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Resources


Acoustic Neuroma Association of New Jersey (ANANJ)
http://www.ananj.org/
ANA/NJ is a volunteer, nonprofit organization for acoustic neuroma patients, their families and friends.

Aftershingles.com
http://www.aftershingles.com
A site dedicated to information concerning shingles and post herpetic neuralgia.

American Academy of Orofacial Pain (AAOP)
http://www.aaop.org/
Organization of professionals whose aim is to promote education and awareness of orofacial pain.

American Cancer Society (ACS)
http://www.cancer.org
Strong site with something for everyone including patients, families, and professionals.

American Headache Society (ACHE)
http://www.achenet.org/
A nonprofit patient-health professional partnership dedicated to advancing the treatment and management of headache and to raising the public awareness of headache as a valid, biologically based illness.  

American Chronic Pain Association
http://www.theacpa.org/
An organization whose goals are to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain. To raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.

Arthritis Foundation
http://www.arthritis.org/
The only national not-for-profit organization that supports the more than 100 types of arthritis and related conditions with advocacy, programs, services and research.

Association for Repetitive Motion Syndromes (ARMS)
http://www.certifiedpst.com/arms
The Association for Repetitive Motion Syndromes (ARMS) is a not-for-profit organization committed to assisting workers at-risk or injured by repetitive motion syndromes.

Cancer Care
http://www.cancercare.org/
A not-for-profit designed to provide free, professional aid to cancer patients.

Central Pain Syndrome Alliance (CPSA)
http://www.centralpain.org
Central Pain Syndrome Alliance began as a group of CPS sufferers post stroke who first began to come together in May 1999.

Chronic Fatigue Syndrome
http://www.cfids.org
The CFIDS Association of America is the largest and most active 501(c)(3) charitable organization dedicated to conquering chronic fatigue and immune dysfunction syndrome.

Fibromyalgia Network
http://www.fmnetnews.com/
Educational materials, including an extensive newsletter. Focused on patient advocacy and helping patients to understand their condition.

Leukemia Society of America
http://www.leukemia.org/
Tons of information, including advocacy networking and free information.

National Cancer Institute (NCI)
http://www.nci.nih.gov
Componenet of NIH that regulates the National Cancer Program.

National Coalition for Cancer Survivorship (NCCS)
http://www.canceradvocacy.org/
Is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors.

National Fibromyalgia Association
http://www.fmaware.org/
Non-for-profit site dedicated to informing communities about Fibromyalgia. Includes magazine, newsletter, and other awareness items.

National Headache Foundation
http://www.headaches.org/
Not-for-profit with an interesting site, split in two, either for professional or headache sufferer.

National Pain Foundation
http://www.painconnection.org/
A non-profit organization that provides education and support resources for people in chronic pain, their families, and physicians.

National Vulvodynia Association
http://www.nva.org
The National Vulvodynia Association (NVA) is a nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders.

Neuropathic Pain Network
http://www.neuropathicpainnetwork.org
The Neuropathic Pain Network (NPN) is a coalition of organizations that exists to actively support people with neuropathic pain, by enabling them to better cope with their pain, to obtain the best treatment and, ultimately, to improve the quality of their lives.

Oncology Nursing Society (ONS)
http://www.ons.org/
Oncology information resource, targeted towards affected individuals and professionals.

Pain Connection
http://www.pain-connection.org
A not-for-profit human service agency that provides monthly support groups (in Montgomery, Prince George's and Anne Arundel Counties and Washington DC), Saturday Speakers Series in Silver Spring, newsletter, website, information and referrals and community outreach and education.

Reflex Sympathetic Dystrophy Syndrome Association of America
http://www.rsds.org
The Reflex Sympathetic Dystrophy Syndrome Association website is dedicated to providing the most comprehensive and timely information for those who are affected by, or interested in, Reflex Sympathetic Dystrophy Syndrome (RSD or RSDS), also known as Complex Regional Pain Syndrome (CRPS).

Self-Help Clearinghouse
http://www.selfhelpgroups.org/
A keyword-searchable database of over 1,100 national, international, model and online self-help support groups for addictions, bereavement, health, mental health, disabilities, abuse, parenting, caregiver concerns and other stressful life situations.

Spine-Health.com
http://spine-health.com
Provides patient information, with animated features, written and peer reviewed by experts.

The Mayday Fund
http://www.painandhealth.org/
Extensive listing of internet resources relating to pain and pain management.

The Vulvar Pain Foundation
http://www.vulvarpainfoundation.org/
non-profit site supporting women with vulvar pain

TMJ Association, Ltd
http://www.tmj.org/
Association fostering research and education about TMJ diseases.

Trigeminal Neuralgia Association
http://www.tna-support.org
Serves patients and their family members by providing information, support and referral assistance.

U.S. Pain Foundation
http://www.uspainfoundation.org
Founded by a fellow pain sufferer, U.S. Pain Foundation believes in the importance of connecting those who share the feelings, frustrations and daily challenges of living with pain.

VZV Research Foundation Inc
http://vzvfoundation.org
Non-profit site with good patient information. The goal of the organization is combating the varicella-zoster virus and VZV infections.