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A - B
Acoustic Neuroma Association of New Jersey (ANANJ)
http://www.ananj.org/
ANA/NJ is a volunteer, nonprofit organization for acoustic neuroma patients, their
families and friends.
Aftershingles.com
http://www.aftershingles.com
A site dedicated to information concerning shingles and post herpetic neuralgia.
American Academy of Orofacial Pain (AAOP)
http://www.aaop.org/
Organization of professionals whose aim is to promote education and awareness of
orofacial pain.
American Alliance of Cancer Pain Initiatives (AACPI)
http://www.aacpi.wisc.edu
Network working to disseminate pain management information and advocacy to communities
and enable legislative reform.
American Cancer Society (ACS)
http://www.cancer.org
Strong site with something for everyone including patients, families, and professionals.
American Headache Society (ACHE)
http://www.achenet.org/
A nonprofit patient-health professional partnership dedicated to advancing the treatment
and management of headache and to raising the public awareness of headache as a
valid, biologically based illness.
American Pain Foundation
http://www.painfoundation.org
A nonprofit organization serving people with pain through information, advocacy,
and support. There mission is to improve the quality of life of people with pain
by raising public awareness, providing practical information, promoting research,
and advocating to remove barriers and increase access to effective pain management.
American Society for Action on Pain
http://www.druglibrary.org/schaffer/asap/
Patient organization interested in pain management issues and concerns.
American Chronic Pain Association
http://www.theacpa.org/
An organization whose goals are to facilitate peer support and education for individuals
with chronic pain and their families so that these individuals may live more fully
in spite of their pain. To raise awareness among the health care community, policy
makers, and the public at large about issues of living with chronic pain.
Arthritis Foundation
http://www.arthritis.org/
The only national not-for-profit organization that supports the more than 100 types
of arthritis and related conditions with advocacy, programs, services and research.
Association for Repetitive Motion Syndromes (ARMS)
http://www.certifiedpst.com/arms
The Association for Repetitive Motion Syndromes (ARMS) is a not-for-profit organization
committed to assisting workers at-risk or injured by repetitive motion syndromes.
 
C - E
Canadian Pain Coalition
http://www.painhurtscanada.ca/
The Canadian Pain Coalition is a Partnership of patient pain groups, health professionals
who care for people in pain, and scientists studying better ways of treating pain.
Their purpose is to promote sustained improvement in the treatment of all types
of pain.
Cancer Care
http://www.cancercare.org/
A not-for-profit designed to provide free, professional aid to cancer patients.
Central Pain Syndrome Alliance (CPSA)
http://www.centralpain.org
Central Pain Syndrome Alliance began as a group of CPS sufferers post stroke who
first began to come together in May 1999.
Chronic Fatigue Syndrome
http://www.cfids.org
The CFIDS Association of America is the largest and most active 501(c)(3) charitable
organization dedicated to conquering chronic fatigue and immune dysfunction syndrome.
F - L
Fibromyalgia Network
http://www.fmnetnews.com/
Educational materials, including an extensive newsletter. Focused on patient advocacy
and helping patients to understand their condition.
Leukemia Society of America
http://www.leukemia.org/
Tons of information, including advocacy networking and free information.
M - O
National Cancer Institute (NCI)
http://www.nci.nih.gov
Componenet of NIH that regulates the National Cancer Program.
National Coalition for Cancer Survivorship (NCCS)
http://www.canceradvocacy.org/
Is the oldest survivor-led cancer advocacy organization in the country and a highly
respected authentic voice at the federal level, advocating for quality cancer care
for all Americans and empowering cancer survivors.
National Fibromyalgia Association
http://www.fmaware.org/
Non-for-profit site dedicated to informing communities about Fibromyalgia. Includes
magazine, newsletter, and other awareness items.
National Headache Foundation
http://www.headaches.org/
Not-for-profit with an interesting site, split in two, either for professional or
headache sufferer.
National Pain Foundation
http://www.NationalPainFoundation.org
A non-profit organization that provides education and support resources for people
in chronic pain, their families, and physicians.
National Vulvodynia Association
http://www.nva.org
The National Vulvodynia Association (NVA) is a nonprofit organization created in
1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic
vulvar pain disorders.
Neuropathic Pain Network
http://www.neuropathicpainnetwork.org
The Neuropathic Pain Network (NPN) is a coalition of organizations that exists to
actively support people with neuropathic pain, by enabling them to better cope with
their pain, to obtain the best treatment and, ultimately, to improve the quality
of their lives.
North American Chronic Pain Association of Canada
http://www.chronicpaincanada.com
The North American Chronic Pain Association of Canada (NACPAC) is a national non-profit
volunteer charitable organization and does not provide any medical services.
Oncology Nursing Society (ONS)
http://www.ons.org/
Oncology information resource, targeted towards affected individuals and professionals.
P - S
Pain Connection
http://www.pain-connection.org
A not-for-profit human service agency that provides monthly support groups (in Montgomery,
Prince George's and Anne Arundel Counties and Washington DC), Saturday Speakers
Series in Silver Spring, newsletter, website, information and referrals and community
outreach and education.
PainLink
http://www.edc.org/PainLink
The Mayday PainLink website is an archived website. It includes project work from
1995 through 2001. Much of the content remains applicable to improving pain management
in institutions.
Reflex Sympathetic Dystrophy Syndrome Association of America
http://www.rsds.org
The Reflex Sympathetic Dystrophy Syndrome Association website is dedicated to providing
the most comprehensive and timely information for those who are affected by, or
interested in, Reflex Sympathetic Dystrophy Syndrome (RSD or RSDS), also known as
Complex Regional Pain Syndrome (CRPS).
Self-Help Clearinghouse
http://www.selfhelpgroups.org/
A keyword-searchable database of over 1,100 national, international, model and online
self-help support groups for addictions, bereavement, health, mental health, disabilities,
abuse, parenting, caregiver concerns and other stressful life situations.
Spine-Health.com
http://spine-health.com
Provides patient information, with animated features, written and peer reviewed
by experts.
T - Z
The Mayday Fund
http://www.painandhealth.org/
Extensive listing of internet resources relating to pain and pain management.
The Vulvar Pain Foundation
http://www.vulvarpainfoundation.org/
Non-profit site supporting women with vulvar pain.
TMJ Association, Ltd
http://www.tmj.org/
Association fostering research and education about TMJ diseases.
Trigeminal Neuralgia Association
http://www.tna-support.org
Serves patients and their family members by providing information, support and referral
assistance.
VZV Research Foundation Inc
http://vzvfoundation.org
Non-profit site with good patient information. The goal of the organization is combating
the varicella-zoster virus and VZV infections.
Wisconsin Pain Initiative
http://www.aacpi.wisc.edu/wcpi/
The WPI is dedicated to overcoming the barriers that prevent the relief of pain.
It is a voluntary, grass-roots organization of health care professionals and representatives
of higher education and government. It has five major areas of service: public education,
patient education, professional education, regulatory updates, making pain management
a priority in all pain management settings.
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